Visitors' civil comments encouraged.

Henrietta Lacks - Getting the credit she never knew was due


NewHampster's picture

NewHampster - Posted on 14 March 2010

HenriettaCBS Sunday Morning had the story of Henrietta Lacks, as told by Rebecca Skloot.  Once thing not mentioned during the interview, is Ms. Skloot or the publisher going to compensate the family from some of the profits?

CBS has not put the show video online and who knows, maybe they won't.  http://www.cbsnews.com/sections/sunday/main3445.shtml

The book and research into this poor, unrecognized woman is truly amazing.  As she was dying of cervical cancer in 1951, doctors took some of her cancerous cells to study.  No permission ever given, which was the norm back in those days.  Besides, she was just a grand daughter of slaves who would end up in an unmarked grave.

The cells were propagated by George Otto Gey without Lacks' knowledge or permission (neither she nor her family gave permission) when she died in 1951.[2]  and later commercialized, although never patented in their original form. Then, as now, there was no requirement to inform a patient, or their relatives, about such matters because discarded material, or material obtained during surgery, diagnosis or therapy, was the property of the physician and/or medical institution.  http://en.wikipedia.org/wiki/HeLa

Notice that the Wikipedia entry for HeLa has no picture of Lacks.  She does have her own entry with photo but the entry about the life that lives on basically speaks to her issue as a legal one.  Perhaps that is right for the Wikipedia, I'd like to see her photo on that page and will try and add it later.

 

Henrietta Lack's cells have continued to live on and be sold for medical research.  They have led to many cures and helped millions, she and her family are just now beginning to get some recognition by history because one Rebecca Skloot has made this her life mission.

From the New York Times 2001 http://www.nytimes.com/2001/11/17/arts/cells-that-save-lives-are-a-mothe...

Cells That Save Lives Are a Mother's Legacy
By REBECCA SKLOOT
Published: November 17, 2001

Deborah Lacks closed her eyes as a young cancer researcher opened the door of his floor-to-ceiling freezer. She stood clutching the ragged dictionary she uses to look up words like ''DNA,'' ''cell'' and ''immortality.'' When the icy breeze hit her face, she opened her eyes slowly, and stared into a freezer filled with tiny vials of red liquid. ''O God,'' she gasped, ''I can't believe all this is my mother.''

Fifty years ago, when Deborah Lacks was still in diapers, her 30-year-old mother, Henrietta Lacks, lay in a segregated ward of Johns Hopkins Hospital in Baltimore. The resident gynecologist sewed radium to her cervix in an attempt to knock out the cancer that was killing her. But before he finished, and without telling her, he took a small sample of her tumor and sent it downstairs to Dr. George Gey (pronounced guy), head of tissue culture research at Hopkins. Dr. Gey had spent almost 30 years collecting cancerous human cells and trying to make them grow, but until Ms. Lacks came along, they never did. Though Henrietta died a few months after her radium treatments, her cells are still living today........

For anyone interested, here is what looks like a historical mystery. 

Share/Save
Your rating: None Average: 5 (1 vote)

It caught my interest, and I starting googling. During my googles, I came across a very thoughtful comment on Newsvine. The man is so eloquent, I decided to post it here. 

Henrietta Lack's 'Immortal' Cells - The Ethics and the Controversy .com(read comments attached to the article at Smithsonian) Opinion by Mic Hudson, Newsvine.com:

 

I have prostate cancer (I am presently undergoing radiation treatment for same) and it is likely HeLa cells were used in making that determination. They charged me to take the sample (biopsy) for the lab to test; they did not PAY ME to do so. I signed a waiver granting them permission to perform this test. ....Nowhere on that form, however, does it say (or imply) they have my permission to use my cells for any other research or purpose beyond determining whether or not I have cancer of the prostate.

 

Now, if they continue using my cells (from the biopsy) in ongoing research (without my knowledge and/or permission), I would say that is a very important ethical matter. It should be brought to light, discussed and an answer provided with which society as a whole can live with and accept.

 

The fact that Henrietta Lack's cells were so used (without her knowledge and/or consent) goes to the very heart of why science continues to stir a huge amount of controversy. It hearkens back to the days when doctors/scientists bought their cadavers (bodies literally stolen from peoples graves) for use in their study of the human anatomy.

 

Thieves are thieves, no matter the title of distinction attached to their name, no matter their preferred choice of goods traded (or bartered) on the "BLACK" market!

 

The doctor who took Henrietta's cells, stole her cells for research, he was a thief (regardless of the benefits later realized by his act). The family, are definitely owed some form of recompense morally and ethically (if not by law, statute or ordinance)!

 

Until the study of the various branches science (which we are now compelled [often by law] to accept as being of so great a benefit to mankind) stops doing research in an underhanded and morally corrupt way, and until society chooses to punish those who would choose the corrupt path in their pursuit of knowledge (generally to the furthering of their own reputation and financial well-being), the question of ethics within the practice of medicine (and/or science in general) becomes mute, so long as society permits it to continue.

 

Is the controversy in the use of stem cell research today because they use the remains of aborted human fetuses or because they have stolen them (without the knowledge and/or consent) from the unsuspecting women involved."

__________________________________________________________________________________________________________

http://newsguru.newsvine.com/_news/2010/02/01/3840401-henrietta-lacks-immortal-cells{"commentId":12123843,"threadId":"781323","contentId":"3840401","authorDomain":"slowrivermic"} 2 votes#2 - Mon Feb 1, 2010 10:49 PM EST